No Hickman Yet

The last two days have been beyond frustrating. I was originally told I would have my Hickman inserted on Monday, than Tuesday, than today, and now it’s tentatively scheduled for tomorrow. All these days I’ve had to go without food and water after midnight until mid-afternoon the next day when they end up telling me the procedure won’t be happening. Today they probably would have gotten me in, but not with the surgeon that I had requested. I put my foot down this time and told them I did not want anyone else inserting my Hickman, especially due to the complications I’ve had in the past. We’re not sure where the breakage in communication is, but I’m now working with one of the Stanford patient advocates to try and get this resolved. Not having my Hickman is holding back both anti-fungal treatments as well as chemo.

The nights continue to be difficult. I rarely get more than 2 hours of sleep and therefore I’m exhausted and not happy in the mornings. Still no word on getting my own room, although my roommate will be leaving tomorrow morning.

I still haven’t received the results of my bone marrow biopsy. I was supposed to know something on Tuesday and still haven’t heard a word. As you can tell I’m getting very frustrated with the lagging of test results and lack of communication by the doctors.