CT's and Fatigue
Although my fevers have been more controlled this week, I have still been feeling very fatigued. It could be due to the fact that I was quite anemic the last time I had my blood drawn, but whatever it is I'm barely able to make it through the workday. I usually sleep all the way home while Chris is driving and the last two days I've had to take a nap as soon as I get home before starting to cook dinner.
Monday was quite a long day. My CT at Stanford wasn't scheduled until 9:30pm so we went over to Stanford mall for a few hours and then went to Chris' mom's house until it was time for my appointment. Fortunately I was seen right away, the IV was successful/painless, and I was out within 20 minutes. I was worried about getting a rash again since the last time I had contrast with my CT I broke out in hives, but I was fine the next day. Who knows what caused the allergic reaction last time...
The radiologist said that my doctor would be able to see the films the following day, however when I called and talked to my NP on Tuesday, she said they would take a look at them Wednesday morning/afternoon. Of course today I was a nervous wreck throughout the day. I kept debating whether to call or not to get the results. I finally heard back from my NP and oncologist around 4:30pm. They told me that my CT looked good and they were happy with the results. Both the mediastinal mass and some of the nodules in my lungs showed considerable shrinkage and the lesion in my liver is down to 1/4 of the size it was when it was first found. They're still expecting that the radiation will have more effect within the next few weeks/months. Again, we don't know if it's the radiation, Procarbazine, or a combination of both that is resulting in the shrinkage.
As it turns out, the orders for the head portion of the CT were not received in time, so that part was not done. I will have to go back tomorrow at 9:30pm to have that portion done. Now that my disease seems to be under control again, the fevers are becoming a bigger mystery. Although a sinus infection is unlikely the cause, they want to rule out the possibility. I'm also scheduled to see the infectious disease specialist on Friday morning to go over the remainder of all the blood tests that I had done two weeks ago and go over the lung portion of the CT scan. I will then know if I have to go on the IV anti-fungal medication for the next few weeks.
Monday was quite a long day. My CT at Stanford wasn't scheduled until 9:30pm so we went over to Stanford mall for a few hours and then went to Chris' mom's house until it was time for my appointment. Fortunately I was seen right away, the IV was successful/painless, and I was out within 20 minutes. I was worried about getting a rash again since the last time I had contrast with my CT I broke out in hives, but I was fine the next day. Who knows what caused the allergic reaction last time...
The radiologist said that my doctor would be able to see the films the following day, however when I called and talked to my NP on Tuesday, she said they would take a look at them Wednesday morning/afternoon. Of course today I was a nervous wreck throughout the day. I kept debating whether to call or not to get the results. I finally heard back from my NP and oncologist around 4:30pm. They told me that my CT looked good and they were happy with the results. Both the mediastinal mass and some of the nodules in my lungs showed considerable shrinkage and the lesion in my liver is down to 1/4 of the size it was when it was first found. They're still expecting that the radiation will have more effect within the next few weeks/months. Again, we don't know if it's the radiation, Procarbazine, or a combination of both that is resulting in the shrinkage.
As it turns out, the orders for the head portion of the CT were not received in time, so that part was not done. I will have to go back tomorrow at 9:30pm to have that portion done. Now that my disease seems to be under control again, the fevers are becoming a bigger mystery. Although a sinus infection is unlikely the cause, they want to rule out the possibility. I'm also scheduled to see the infectious disease specialist on Friday morning to go over the remainder of all the blood tests that I had done two weeks ago and go over the lung portion of the CT scan. I will then know if I have to go on the IV anti-fungal medication for the next few weeks.
posted by Erika @ 9:30 PM
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